What being a glass child taught me about raising siblings. Dear younger me, I understand us now more than I ever have before. I’m no longer frustrated with the choices we made when all we wanted was to be seen. The ache to feel noticed, to feel accepted, to find a place where we could…
Advocacy, Instinct, and Finding Your Voice in Medical Spaces After sitting and waiting for others to tell us what was happening with Baby L, I was more than ready to jump in and become the mom she needed. During the week I wasn’t able to hold her after her tracheostomy and gastrointestinal tube’s were placed,…
Support, Grace and Showing Up When a Child is Medically Complex They say it takes a village to raise a child. When you have “typical” child, you can often get by with a very small village. But when you receive the news that your child will be medically complex, you feel deeply alone. What you…
The Deep Water Mother 